‘Live in the moment- it’s all I can do’

Taken from the film ‘Still Alice’ this resonates with me and key to my understanding as to what mindfulness is about:

* Present- be where you are

* Acceptance- tolerance towards others but also ourselves

* Kindness- Compassion and empathy

Moved to the city for the ADI Conference today not before walking to Burns beach- a 40 minute walk from where I’ve been staying over the last few days. The weather has been beautiful and hot but with a cooling breeze to make it bearable. Got speaking to a fellow nurse at the beach cafe who’d worked in Inverness and stayed not many miles away from me- small world.

Went along to the screening of ‘Still Alice’ which was followed by a panel discussion which included:

Rhonda Parker- CEO Alzheimer’s Australia West Australia ( and chair)

Glenda and Bronte Parkin- Glenda is living with a diagnosis of younger- onset Alzheimers Disease and Bronte is her husband and care partner

Marc Wortman- Executive Director of Alzheimer’s Disease International

Elizabeth Gelfand Searns- Co- Producer of Still Alice

Dr Yves Joanette- Neuroscientist from Canada

Rhonda asked all panel members the same question:

What is the best thing about the movie?

Responses included- bringing Alzheimers Disease to life, helps to increase conversations and face stigma. Challenges public policy and communities to understand and own it. That Dementia knows no boundaries and explores the impact on the person living with dementia- diagnosis, relationships and work.

Dr Yves Joanette spoke about how the ‘Still’ in still Alice is of uttermost importance- asking who are we really? Alice is ‘still’ Alice as is Glenda is ‘still’ Glenda and that love, emotions and relationships are still there and to see the person behind the condition.

If you haven’t yet seen ‘Still Alice’ then I encourage you to go.

Helga Rohra from Germany who is the chair of the European Working Group of people with Dementia posed the question as to ‘what dementia looks like’ after being told on many occasions, you can’t possibly have dementia (due to continued high- functioning) and that the faces of dementia are different. Kate Swaffer also speaks about this in her blog.

Looking forward to the formal opening of the ADI conference tomorrow.

One thought on “‘Live in the moment- it’s all I can do’

  1. I am really enjoying your blog Ruth, the long walks and the people you are bumping into. Myself and four colleagues went to see Still Alice last week. There was a profound silence at the end, not one person got up to leave. The emotions were palpable, it was very thought provoking. Random request now but knowing you, you will bump into him anyhow – please look out for Iain Houston, he is a Dementia Adviser like myself and he is doing the Masters Module with me. I believe he has a poster or giving a presentation. Looking forward to your next post Ruth and hello from me and all your Alzheimer Scotland colleagues in Highland. Geraldine D

    Liked by 2 people

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